One family’s journey with the Undiagnosed Diseases Network

Jason, James, and Amy Lair on the family farm

When you seek medical care, you expect a diagnosis. You may need to answer a lot of questions and undergo tests, but usually doctors can figure out the root of the problem. This is not the case for a surprisingly large group of patients. According to the National Institutes of Health (NIH), 25 million to […]

Treating the untreatable: David’s story

David Duggan, has an appointment with Armin Ghobadi, MD, for follow-up of his treatment of T-cell prolymphocytic leukemia.

Three years ago, a routine blood test showed that David B. Duggan, MD, had a high white-blood-cell count, suggesting an infection or illness of some sort.  “But I felt great,” recalled Duggan, a hematologist in New York. In his late 60s at the time, Duggan was active — he cycled, swam and worked on his […]

Hope against the odds: surviving a complex brain tumor

Scott Keifer spends time at home with his wife, Claire, and dogs, Rome (dark coat) and Murphy

When a life-threatening diagnosis brought Scott’s world to a halt, he was referred to the Taylor Family Department of Neurosurgery at WashU Medicine, where hope awaited. Not only were the specialists who could help him here, but it was also where the innovative treatment that ultimately saved his life was first performed. In the fall […]